Reader Feedback

7 06 2008

I’ve received some great posts in the comments these past few days and would like to share 2 of them in my blog so you can find them more easily. First this one:

Sasha, when I got really sick this year with RA me and my bf stopped having sex and then it just miraculously came back. We didn’t do anything different we just started wanting it again. Perhaps, the fact that you’re worried about it and want it so much make it harder for it to happen. Perhaps just relax and realize that it’s okay to have lulls and it will come back on it’s own. She Also wrote: I have 3 autoimmunes: Vitiligo (got when I was three) and hypothyroid and rheumatoid arthritis this year. I am convinced they’re all related. But maybe that’s good. Maybe when they figure out how to fix one they’ll fix them all! -Libby

Libby makes such a good point here that I think i would be cheating myself to not try it. Good point. Perhaps what my couples therapist would advise!! This one from another reader:

Me too. I so very much appreciate the caregiving, but if I could afford it would rather pay someone else to be driver, cook, housekeeper, caretaker. We came into each others’ lives for the joy, the fun, the sex, the adventure. I’m absolutely certain that if the situation were reversed I would make maintaining the intimacy a top priority, it’s so (CLICK TO Read more about caregiver relationships and also multiple diagnosis of autoimmune diseases)…HERE –>life-enhancing and important to the psyche and soul. This arms-length relationship is so lonely. I miss sex terribly, hate the distance between us. It makes me feel like less than a woman, less than human, only invalid, and with nothing to offer. Don’t know how to get him to see ME any more or again. Sighhhh . . . . Anyway, you’re not alone. I’ll let you know if I find a solution / strategy / answer, and please do the same for me. -Laura

She says it so well. This is a brilliant way of describing my exact experience. She also mentioned:

I too have RA + pancreatitis + hypothyroid (autoimmune) . . . and asthma, fibromyalgia, migraines, depression (go figure!). It’s tough to accept each additional diagnosis, but the more people I talk with the more I find have multiple issues.

The longer I have been doing my site here the more people I’ve spoken with online that have multiple diagnosis. It is very odd/interesting. They all seem to be auto-immune diseases of some kind. I’ve read differing facts about pancreatitis…some say it is an auto-immune issue and others say it is not. I find it too bizarre that women are coming up with the same identical combo of diseases. Has anyone looked further into this? Obviously, RA & Hypothyroid have been linked together for quite some time. But what in the world do RA and pancreatitis have to do with one another? Of course depression would certainly go with all of this since this stuff is so depressing.




One response

18 07 2008

Try to find the relatioinship between three autoimmune you have. I only know about vitiligo amongs them which deep definition is hereunder.
“Vitiligo is a pigmentation disorder in the human skin. The human skin contains special skin cells (melanocytes) that produce the pigment melanin which colors the skin.
In Vitiligo, the special skin cells (melanocytes) as well as the tissues (mucous membranes) that line the inside of the mouth, nose, genital and rectal areas, and the retina of the eyes are destroyed. As a result, white patches of skin appear on different parts of the body. The hair may also turn white that grows in areas affected by vitiligo.”

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