LA/Hollywd 11/14 Support Group

27 10 2009

Click on link to sign up:
http://www.meetup.com/The-Hollywood-Chronic-Pain-Support-Group/

The Los Angeles/Hollywood Chronic Pain Support Group

Meet someone JUST LIKE YOU.
WHEN: Saturday, November 14th, 2009 from 11am-1pm.

WHERE: Meeting place is 2 Blocks from Sunset and Vine.
Come make new friends!

The Los Angeles / Hollywood Chronic Pain Support Group was established to get together once a month to talk intimately about life, love, and living with Chronic Pain. For us, it is important to have a safe monthly gathering place for anyone suffering from chronic pain. We share our triumphs, hurdles and pain.

We encourage attendees to share about how they soothe themselves during flare-ups, how they manage work and play, and how they juggle the body and mind in the hopes that we each can find new ways of getting out of pain for longer periods of time. Our main purpose of meeting is simply to have a place to discuss the REAL issues we each face.

 

In an intimate setting we’ll share our experience, strength, and hope with one another. We’ll discuss the hurdles we really face of living with chronic pain. The frightening reality of intimacy, the reality of relationships, managing a job or boss, and positive ways that we’ve found to cut down on our pain. The group’s focus is to discuss issues we face living with chronic pain for any reason – some my have Lupus, others may have had an injury. I have Lupus, Rheumatoid Arthritis, Chronic Pancreatitis, and Diabetes Type 2.

Hi! I’m Sasha, and I started this meetup because I’ve been wanting to be a part of chronic pain support group for a very long time. I seem to always miss the meetings in my area or the meeting seems to touch on items I’m not really interested in–so I’ve decided to start one.

The meetings are currently being held at in an artist loft’s building in Hollywood. The meeting format is in an intimate, safe environment,

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CHRONIC PAIN SUPPORT GROUP

28 09 2009

We’re having our next chronic pain support group on October 10th, 2009.  All are welcome to attend.  All you need to do is sign up at our meet-up groups page and then RSVP for the event.  This time we’re doing it on a Saturday morning at 11am so that more people can attend.  We hope to see you there!   – it’s a brunch potluck so bring what you like.  visit our meet-up website: http://tinyurl.com/hcpsg

OCTOBER 10th – Saturday at 11am.  Support Group meeting located in Hollywood.





MEETUP LOS ANGELES

20 07 2009

Attention fellow bloggers, websites, admins, etc.  Please post anywhere possible.

The Los Angeles  – Hollywood Chronic Pain Support Group will have it’s very first meeting AUGUST 2nd, (Sunday) at 6:30pm-9pm.  Join and RSVP here.

The Los Angeles / Hollywood Chronic Pain Support Group was established to get together once a month to talk intimately about life, love, and living with Chronic Pain.  It’s important to have a safe monthly gathering place for anyone suffering from chronic pain. With a specific focus on those living with a chronic disease such as one or more automimmune diseases, we share our triumphs, hurdles and pain, but we also offer resources such as alternate medicine pathways and non-Rx treatments to alleviate pain. The meetings are open to anyone living in/with chronic pain. For more information and to sign up and RSVP:  http://www.meetup.com/the-hollywood-chronic-pain-support-group or for those that need a shorter url: http://www.tinyurl.com/hcpsg





MEETUP LOS ANGELES

12 07 2009

Here’s an article sent to me by the National Pancreas Foundation’s Newsletter about dealing with keeping your job when you have chronic pain: “Protecting Your Job While Coping With a Chronic Illness

The Hollywood Chronic Pain Support Group Logo

The Los Angeles  – Hollywood Chronic Pain Support Group will have it’s very first meeting AUGUST 2nd, (Sunday) at 6:30pm-9pm.  Join and RSVP here.

Today, after getting fed up with the utter lack of support groups for anyone in my situation with multiple autoimmune diseases OR chronic pain – I decided it’s about time I take some action.  My blog is called “Type A” with RA afterall.  And being a good Type A person – I feel it’s my duty.  Not that I have the energy to do this – but I need to reach out so badly that I’ve decided to spend my energies on an actual support group rather than continuing my never-ending search.  Also, I want a place where I can actually talk about forced sober living with pancreatitis, death and pancreatitis, what to eat with any autoimmune disease, what actually helps for lupus, death and lupus, and all kinds of things that really matter to me.  Beyond that, after my last almost meeting I had received quite a number of emails asking when the next meeting would be.  So below I have pasted the exact text that is at this link on the new meetup page.- but from this link you can sign-up to attend.  We’ll welcome any and all out of town guests.   If you run a blog, could you mention this meetup?  Well, I have my first client all week – so I better get on it.   – Love, Sasha xoxo

This is the welcome message I wrote:

Welcome to the Hollywood Chronic Pain Support Group!
Thanks so much for joining- You are truly not alone!

We look forward to having you at our next meeting. We are brand-spankin’ new group, but committed to getting together once a month to talk about our struggles, triumphs and lives.  Please RSVP for our next meeting.

I’m Sasha, your Group Organizer.  I almost wrote “reluctant group organizer” because I live with 4 diseases that often take me down for three days at a time.  I have Lupus, Rheumatoid Arthritis, Chronic Pancreatitis, and Diabetes Type 2.  I have enough energy to get the group started, but as we begin to meet I will ask each member to take on a very small role of participation.  This way it will be more doable and sustainable to meet each month – I know we all need it!

I was surprised or rather, shocked that there are so few support groups around the globe.  I have searched for quite some time to find a support group here in Los Angeles.  I’m guessing that you might have done the same.  The meetings will be structured so that we all get the very most out of them.  Everyone likes to have snacks and drinks, but if you’re like me – you don’t know what you’d say without some icebreakers.  For this reason we will have a guest speaker briefly give their personal story followed by individual sharing on a volunteer basis.

Please Note: I’ve currently closed the group mailing list until we have a member managing the list.  I can only do so much – –

SOME BASIC AGREEMENTS:
1) In order to best serve the group we ask that caregivers do not attend with you – unless you are a caregiver and your mate is not going to be attending our group.

2) Each meeting we’ll pass the hat to donate what we can to the organizers.

3) If you’re seeking anonymity – we will honor your request.

4) We’ll all respect each others abilities.  Each of us may come to be temporarily too ill to fulfill our role/responsibilities.  We’ll all help out.

END ###





AUTOIMMUNE DISEASES GALORE (Part I)

27 05 2009

AUTOIMMUNE DISEASES GALORE (Part I)

Thank you to all of you wonderful readers out there who have sent the loveliest messages to me.  Encouraging words are  awesome, but knowing that behind each email, comment, or call that there’s someone who knows my physical and often my mental pain – that’s amazing.  As many of you would concur  – I would not wish the pain of RA, CP, or any pain of the heart on anyone.  

THE OVERVIEW

My heart and spirit are much lighter today then in many months.  Why the difference?  First, I was pulled off of Wellbutrin (an anti-depressant) and within 7 days my entire outlook felt brighter then it has since November (when I went on it).  I am glad i tried it out – I really did need to be on anti-depressants at the time… but I am shocked at how suicidal it eventually made me feel.  I broke all of the glass in my kitchen, cut up my arm really badly (on purpose), then cut up my legs and other arm when that didn’t seem to do the trick (not to die, but simply to cause myself that numbing pain that all cutters know so well).   It was a nightmare, but for the first time I see it was really a call for help.  I needed help so badly.  I was/am deeply lucky Jax (my ex-boyfriend and best friend) heard all the glass breaking because he came over and helped me clean up.  Then he called my parents and doctors.  Of course I feared he’d want to stay far as hell away from me after that but it’s had an odd effect I’ll write about in a minute.

So this is the state of things now:  I just got diagnosed with my 4th autoimmune disease: DIABETES!  I had pre-diabetes for the past year, but now it is full-blown diabetes.  This is the cause of my never-ending weight battle.  Now I’ll still have to work out 3-4 times a week, but at least I’ve begun moving the scale (and not just under the table).  So here’s my current autoiummune disease list: Rheumatoid Arthritis, Interstitial Cystitis, Hypothyroid, Diabetes 2 and then Chronic Pancreatitis. And I also have the tentative Lupus Dx sitting in the wings.  I always wonder if it all tied to Lupus.  Anyhow, the news did not shake me the way i would’ve thought.  Now I think it is all hysterical.  I mean, it’s literally gotten absurd.  (Read more about my personal life on this subject here)  I’m sure it’s all related in some way that modern medicine can’t decode. 

 

THE DEPRESSION/GETTING HELP

Now, about my severe depression.  I am feeling a lot better, but my Dr’s have told me it is very usual to fall into this trap AFTER the pain is finally under control.   Read the rest of this entry »





THE PERSONAL TOLL (Pt 2)

27 05 2009

AUTOIMMUNE DISEASES GALORE (Part 2)

THE PERSONAL TOLL

THE CAREGIVER’S BROKEN ARMS.

 

Here’s my current autoiummune disease list: Rheumatoid Arthritis, Interstitial Cystitis, Hypothyroid, Diabetes 2 and then Chronic Pancreatitis. And I also have the tentative Lupus Dx sitting in the wings.  I always wonder if it all tied to Lupus.  Anyhow…I was just diagnosed with Diabetes. I’ll try the new meds and come up with a plan w/ my Dr. in about a month.

…the news did not shake me the way i would’ve thought.  Now I think it is all hysterical.  I mean, it’s literally gotten absurd.   I finally feel like this is all so much that I will prevail – I have to  – from where I stand now it can only go 2 ways: 1: UP (the only way it will go) and the other is death – which I have no control over anyhow – and it certainly is no way to live out the days i do have left on Earth…so I am choosing to now laugh in the face of adversity.  You know that great scene in Forest Gump when Lieutenant Dan is legless and sitting on to of the boat  during the hurricane?  That’s me – except for that I am now finally past the storm saying I won.  I know that might sound odd-  how could I feel like I won if I just found out I have another f–ed up disease – but, it’s because NONE of it has had the power to take me down.  NONE of it!  I’m stronger than all 5 chronic diseases and I’m sure if another one got added to the list i would find the strength to feel the same way.  

 

The disease (or rather these diseases) have already taken EVERYTHING away from me that I love and care about.  I am not even exaggerating…. My family couldn’t hold itself up through it, my own father has chosen to be angry at me for it,  my relatives find themselves in the dust simply saying “poor girl”, old friends disappeared, jobs vanished, my career and company fell off the map, and my true love imploded from the sheer stress of the lifestyle this disease gave me.   Read the rest of this entry »





CHRONIC PAIN SUPPORT GROUP – LA

10 04 2009

Chronic pain support group – Los Angeles

Do you live in the Los Angeles area and interested in meeting up in the real life world by joining a monthly get-together group for anyone living with chronic pain and their mates?  If so then please read on for details. for event on Sunday, MAY 2nd, 2009 @ 6pm in Hollywood, CA.

I’ve decided to start a monthly get-together for chronic pain people and their mates are invited along also.  Of course we can pay a lot of money for someone else to put something like this on for us… but I love the idea of hosting the event at my place  – so it’s comfy – grab a cusion, a blanket and the couch.  Please email me for the details.  Our 1st get together will be the first Sunday evening in May – Sunday MAY 2nd, 2009 @ 6pm.  (Doing it on Sunday will hopefully allow people to avoid the traffic, but also allow them to still have the entire weekend for themselves).  I’ll also post this in several places to get a larger group. Feel free to post this on other sites. My ideal group size would be 14 people.  Email: lifeofsasha [at] gmail.com.

– love Sasha.  xoxo