LA/Hollywd 11/14 Support Group

27 10 2009

Click on link to sign up:
http://www.meetup.com/The-Hollywood-Chronic-Pain-Support-Group/

The Los Angeles/Hollywood Chronic Pain Support Group

Meet someone JUST LIKE YOU.
WHEN: Saturday, November 14th, 2009 from 11am-1pm.

WHERE: Meeting place is 2 Blocks from Sunset and Vine.
Come make new friends!

The Los Angeles / Hollywood Chronic Pain Support Group was established to get together once a month to talk intimately about life, love, and living with Chronic Pain. For us, it is important to have a safe monthly gathering place for anyone suffering from chronic pain. We share our triumphs, hurdles and pain.

We encourage attendees to share about how they soothe themselves during flare-ups, how they manage work and play, and how they juggle the body and mind in the hopes that we each can find new ways of getting out of pain for longer periods of time. Our main purpose of meeting is simply to have a place to discuss the REAL issues we each face.

 

In an intimate setting we’ll share our experience, strength, and hope with one another. We’ll discuss the hurdles we really face of living with chronic pain. The frightening reality of intimacy, the reality of relationships, managing a job or boss, and positive ways that we’ve found to cut down on our pain. The group’s focus is to discuss issues we face living with chronic pain for any reason – some my have Lupus, others may have had an injury. I have Lupus, Rheumatoid Arthritis, Chronic Pancreatitis, and Diabetes Type 2.

Hi! I’m Sasha, and I started this meetup because I’ve been wanting to be a part of chronic pain support group for a very long time. I seem to always miss the meetings in my area or the meeting seems to touch on items I’m not really interested in–so I’ve decided to start one.

The meetings are currently being held at in an artist loft’s building in Hollywood. The meeting format is in an intimate, safe environment,





CHRONIC PAIN SUPPORT GROUP

28 09 2009

We’re having our next chronic pain support group on October 10th, 2009.  All are welcome to attend.  All you need to do is sign up at our meet-up groups page and then RSVP for the event.  This time we’re doing it on a Saturday morning at 11am so that more people can attend.  We hope to see you there!   – it’s a brunch potluck so bring what you like.  visit our meet-up website: http://tinyurl.com/hcpsg

OCTOBER 10th – Saturday at 11am.  Support Group meeting located in Hollywood.





PAIN AND BONES

7 08 2009

I found this in my drafts folder and it’s amazing how depressed I was only a few weeks ago.  The program I am now in is really helping me get through this depression.  Even though I’m not in this head space now – I think it’s important to reflect on what a bad place I was in:  So I have RA. I hate it.  I have Lupus.  I hate it.  I have Chronic Pancreatitis  I hate it.  I have Diabetes Type 2 and I don’t even care.  Why?  Because it is truly the least of my problems – even knowing that for many people it is a major issue for them.  For me it is just a drop in the bucket.

I hate myself this week.  I hate that I’ve lost everything because of chronic diseases (or at least it feels that way).  I’m trying to get my life back on the right tracks, but I feel so depressed lately that I can barely motivate myself to do anything.  I’m losing work – of that I am certain.  I’ve lost my business, my true love (Jax – you can read more on this in the About section).  I’ve lost so much I don’t even remember all that I’ve lost.  My legs are always swollen and I just can’t seem to find that “happy place”.  I used to have it.  I used to be in it.

I started taking a new medication this past week and it made me so groggy I must’ve snoozed momentailry at a red light and accidentally tapped the car in front of me.  Only it is more like a car accident than a tap considering the cost of the damage.

My hands hurt too much to keep typing… but I wish I could keep telling you about how shit things seem right now.  I’ve lost my sunshine and I don’t know how to get it back.  I did start a prgram this past week for dealing with my depression.  I NEVER had deep depression until these diseases wreaked havoc on me and my life. Well, that and the issues from my childhood.  UGH!!! There is far too much to deal with and unravel about my life.  Why can’t I just write it down on paper and get the fuck over it??? I want to! I certainly don’t want to sit here and bitch about it!!

How can I get ME back??

Love Sasha xoxo

PS – Join me on Twitter: @typeawithra
• Also Join me on IllnessTwitters • And on Meetup
• Come to the Hollywood/Los Angeles Chronic Pain Support Groups next  Meetup: September 13th @6:30pm





September Support Group

7 08 2009

http://www.meetup.com/The-Hollywood-Chronic-Pain-Support-Group/

 

The Los Angeles/Hollywood Chronic Pain Support Group

September 13th – 6:30-9pm

Come make new friends!.

Meeting place is 2 Blocks from Sunset and Vine.

 

In an intimate setting we’ll share our experience, strength, and hope with one another. We’ll discuss the hurdles we really face of living with chronic pain. The frightening reality of intimacy, the reality of relationships, managing a job or boss, and positive ways that we’ve found to cut down on our pain. The group’s focus is to discuss issues we face living with chronic pain for any reason – some my have Lupus, others may have had an injury. I have Lupus, Rheumatoid Arthritis, Chronic Pancreatitis, and Diabetes Type 2.

 

Hi! I’m Sasha, and I started this meetup because I’ve been wanting to be a part of chronic pain support group for a very long time. I seem to always miss the meetings in my area or the meeting seems to touch on items I’m not really interested in–so I’ve decided to start one.

 

The meetings are currently being held at in an artist loft’s building in Hollywood. The meeting format is in an intimate, safe environment, but will be structured with time allotted for a meeting speaker who will share their personal story for 15 minutes, then we’ll open it up for anyone wanting to sharing their good or hard times. Finally, we’ll have snacks/drinks while getting to know one another better.

 

UPCOMING MEETING: We ask anyone well enough to bring something to eat. Participation will be as much or as little as you are capable of doing.

 

Please RSVP and I’ll send you some options for food/drinks to bring, parking and door instructions.





MEETUP LOS ANGELES

20 07 2009

Attention fellow bloggers, websites, admins, etc.  Please post anywhere possible.

The Los Angeles  – Hollywood Chronic Pain Support Group will have it’s very first meeting AUGUST 2nd, (Sunday) at 6:30pm-9pm.  Join and RSVP here.

The Los Angeles / Hollywood Chronic Pain Support Group was established to get together once a month to talk intimately about life, love, and living with Chronic Pain.  It’s important to have a safe monthly gathering place for anyone suffering from chronic pain. With a specific focus on those living with a chronic disease such as one or more automimmune diseases, we share our triumphs, hurdles and pain, but we also offer resources such as alternate medicine pathways and non-Rx treatments to alleviate pain. The meetings are open to anyone living in/with chronic pain. For more information and to sign up and RSVP:  http://www.meetup.com/the-hollywood-chronic-pain-support-group or for those that need a shorter url: http://www.tinyurl.com/hcpsg





I’VE GONE CRAZY

20 07 2009

hcpsgpic

That’s right. I’ve felt decent for the past 3 days and have used all of my energy doing the following.  If I had this much energy everyday I could actually change the world.  I used to have this much energy and it makes me simply cry to know it is only on rare occasions now.  So here goes:

1. I started the Los Angeles/ Hollywood Chronic Pain Support Group and set our first meetup as August 2nd, 2009@6:30pm – Everyone welcome. Simply signup and RSVP.

2. Started my new Twitter Account for TypeAwithRA.

Join me on twitter and let me know if you’d like to link up.

3. Started a new group on Illness Twitters.  Not entirely certain of how it all works yet – but here is the link in case you are curious.  Visit Illness Twitters

3a. Clearly avoiding thoughts about something important – ah yes – my severe depression/anxiety that started all as a result of getting so sick, my life falling to shambles and facing the possibility that I have to abandon my life’s dreams.

4.  Finished 2 client projects and only have 4 more to go to get caught up.  I also tackle major stacks of paperwork including bills, health insurance/medical paperwork I need to turn in to try to get financial aide for my health insurance.  If it works I will then post a bit about the process I went through, but so far it is not a yellow brick road.

5. Avoided completing my SSI paperwork.   <<Read on for more on getting or not getting on SSI, an assistant, so many losses due to this disease! and starting day 1 at a mental health program for severe depression >>… Read the rest of this entry »





MEETUP LOS ANGELES

12 07 2009

Here’s an article sent to me by the National Pancreas Foundation’s Newsletter about dealing with keeping your job when you have chronic pain: “Protecting Your Job While Coping With a Chronic Illness

The Hollywood Chronic Pain Support Group Logo

The Los Angeles  – Hollywood Chronic Pain Support Group will have it’s very first meeting AUGUST 2nd, (Sunday) at 6:30pm-9pm.  Join and RSVP here.

Today, after getting fed up with the utter lack of support groups for anyone in my situation with multiple autoimmune diseases OR chronic pain – I decided it’s about time I take some action.  My blog is called “Type A” with RA afterall.  And being a good Type A person – I feel it’s my duty.  Not that I have the energy to do this – but I need to reach out so badly that I’ve decided to spend my energies on an actual support group rather than continuing my never-ending search.  Also, I want a place where I can actually talk about forced sober living with pancreatitis, death and pancreatitis, what to eat with any autoimmune disease, what actually helps for lupus, death and lupus, and all kinds of things that really matter to me.  Beyond that, after my last almost meeting I had received quite a number of emails asking when the next meeting would be.  So below I have pasted the exact text that is at this link on the new meetup page.- but from this link you can sign-up to attend.  We’ll welcome any and all out of town guests.   If you run a blog, could you mention this meetup?  Well, I have my first client all week – so I better get on it.   – Love, Sasha xoxo

This is the welcome message I wrote:

Welcome to the Hollywood Chronic Pain Support Group!
Thanks so much for joining- You are truly not alone!

We look forward to having you at our next meeting. We are brand-spankin’ new group, but committed to getting together once a month to talk about our struggles, triumphs and lives.  Please RSVP for our next meeting.

I’m Sasha, your Group Organizer.  I almost wrote “reluctant group organizer” because I live with 4 diseases that often take me down for three days at a time.  I have Lupus, Rheumatoid Arthritis, Chronic Pancreatitis, and Diabetes Type 2.  I have enough energy to get the group started, but as we begin to meet I will ask each member to take on a very small role of participation.  This way it will be more doable and sustainable to meet each month – I know we all need it!

I was surprised or rather, shocked that there are so few support groups around the globe.  I have searched for quite some time to find a support group here in Los Angeles.  I’m guessing that you might have done the same.  The meetings will be structured so that we all get the very most out of them.  Everyone likes to have snacks and drinks, but if you’re like me – you don’t know what you’d say without some icebreakers.  For this reason we will have a guest speaker briefly give their personal story followed by individual sharing on a volunteer basis.

Please Note: I’ve currently closed the group mailing list until we have a member managing the list.  I can only do so much – –

SOME BASIC AGREEMENTS:
1) In order to best serve the group we ask that caregivers do not attend with you – unless you are a caregiver and your mate is not going to be attending our group.

2) Each meeting we’ll pass the hat to donate what we can to the organizers.

3) If you’re seeking anonymity – we will honor your request.

4) We’ll all respect each others abilities.  Each of us may come to be temporarily too ill to fulfill our role/responsibilities.  We’ll all help out.

END ###